[ELIXIR-ITA_ml] [ELIXIR-IT] Registration OPEN for the "Summer School on Rare Disease Registries and FAIRification of Data" , 25-29 Sep 2023, Rome, Italy

[General ELIXIR-Italy Mailing list]

COURSE ANNOUNCEMENT
Please circulate this email to those who might be interested.


ELIXIR-IT is pleased to announce the new edition of the *"International
Summer School on Rare Disease Registries and FAIRification of Data."*


IMPORTANT DATES:

*Deadline for applications: 5 July 2023*
Course date: 25-29 September 2023

VENUE:
Aula Bovet, Istituto Superiore di Sanità, Viale Regina Elena, 299- Rome,
Italy

FEE
The course and registration are free of charge.

COURSE DESCRIPTION
This course consists of two modules:
- the first module, titled “Rare disease registries” (25-27 Sep), aims to
illustrate what resources are needed for the establishment/maintenance of a
high-quality registry, and the features of successful strategies to ensure:
1) Long-time sustainability of the registry, 2) Quality, 3) Legal and
ethical issues in compliance with the EU General Data Protection Regulation
and 4) FAIR principles;
- during the second module “FAIRification of data” (28-29 Sep) participants
will work together with FAIR/Data stewards to deepen the FAIRification
process.

TARGET AUDIENCE
The training course is open to the international research community,
clinicians, medical specialists, registry curators, database managers,
healthcare professionals, and rare disease patient representatives.

COURSE REGISTRATION
Registration form is available at this link
<https://forms.office.com/Pages/ResponsePage.aspx?id=AcQ6OB2ia0KAcl90w2twkwIAS7lBJQZFpmFZsUI0eFtURVpLUElFRTAzN000N1pMSldZTkRJMDZYRS4u>


For all the information, please visit the *Course website*:
https://www.ejprarediseases.org/event/international-summer-school-on-rare-disease-registries-and-fairification-of-data-2/

For all kinds of queries, please contact Dr. Claudio Carta at:
claudio.carta a iss.it


Kind regards,

Loredana Le Pera (ELIXIR-IT Deputy Training Coordinator, ISS, Italy)

on behalf of the ELIXIR-IT Training Team.

*We apologise for cross-posting. **Please, email us back with the word
REMOVE as the subject line, if you don't want to receive messages from
ELIXIR-IT Training anymore.*

-- 
*ELIXIR-IIB Training *
https://elixir-iib-training.github.io/website/
-------------- parte successiva --------------
Un allegato HTML è stato rimosso...
URL: <http://srv00.area.ba.cnr.it/pipermail/elixir-ita_ml.elixir-ita.cnr.it/attachments/20230529/e98fe22c/attachment.html>