<div dir="ltr"><div><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><font face="arial, sans-serif">COURSE ANNOUNCEMENT<br><span style="color:rgb(0,0,0);font-size:13.3333px;white-space:pre-wrap">Please circulate this email to those who might be interested.</span><b><br></b></font></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><font face="arial, sans-serif"><br></font></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><font face="arial, sans-serif">ELIXIR-IT is pleased to announce the new edition of the <b>&quot;International Summer School on Rare Disease Registries and FAIRification of Data.&quot;</b></font></p><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><br></p></div><div class="gmail_quote"><div dir="ltr"><div dir="ltr"><font face="arial, sans-serif"><span style="background-color:transparent;color:rgb(0,0,0);font-size:10pt;white-space:pre-wrap">IMPORTANT DATES:</span><br></font></div></div><div dir="ltr"><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><font face="arial, sans-serif"><span style="font-size:10pt;color:rgb(0,0,0);vertical-align:baseline;white-space:pre-wrap;background-color:transparent"><b>Deadline for applications: 5 July 2023</b></span><span style="font-size:10pt;color:rgb(0,0,0);vertical-align:baseline;white-space:pre-wrap;background-color:transparent"><br></span><span style="font-size:10pt;color:rgb(0,0,0);vertical-align:baseline;white-space:pre-wrap;background-color:transparent">Course date: 25-29 September  2023</span></font></p></div><div dir="ltr"><font face="arial, sans-serif"><br></font></div><div dir="ltr"><span style="color:rgb(0,0,0);font-size:13.3333px;white-space:pre-wrap"><font face="arial, sans-serif">VENUE:  </font></span></div><div dir="ltr">Aula Bovet, Istituto Superiore di Sanità, Viale Regina Elena, 299- Rome, Italy<br></div><div dir="ltr"><font face="arial, sans-serif"><br></font></div><div><font face="arial, sans-serif">FEE</font></div>The course and registration are free of charge.<div><span style="font-family:arial,sans-serif"><br></span></div><div><span style="font-family:arial,sans-serif">COURSE DESCRIPTION</span><br></div>This course consists of two modules:<br>- the first module, titled “Rare disease registries” (25-27 Sep), aims to illustrate what resources are needed for the establishment/maintenance of a high-quality registry, and the features of successful strategies to ensure: 1) Long-time sustainability of the registry, 2) Quality, 3) Legal and ethical issues in compliance with the EU General Data Protection Regulation and 4) FAIR principles;</div><div class="gmail_quote">- during the second module “FAIRification of data” (28-29 Sep) participants will work together with FAIR/Data stewards to deepen the FAIRification process.<br><div><span style="font-family:arial,sans-serif"><br></span></div><div><span style="font-family:arial,sans-serif">TARGET AUDIENCE</span><br></div><div bgcolor="#FFFFFF"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div dir="ltr"><div><span style="font-family:arial,sans-serif">The training course is open to the international research community, clinicians, medical specialists, registry curators, database managers, healthcare professionals, and rare disease patient representatives.</span><font face="arial, sans-serif"><br><br></font></div><div><span style="font-family:arial,sans-serif">COURSE REGISTRATION</span><br></div><div><font face="arial, sans-serif">Registration form is available at this <a href="https://forms.office.com/Pages/ResponsePage.aspx?id=AcQ6OB2ia0KAcl90w2twkwIAS7lBJQZFpmFZsUI0eFtURVpLUElFRTAzN000N1pMSldZTkRJMDZYRS4u" target="_blank">link</a></font></div><div><font face="arial, sans-serif"><br></font></div><div><font face="arial, sans-serif"><br></font></div><div><font face="arial, sans-serif">For all the information, please visit the <b>Course website</b>: <br></font></div><div><font face="arial, sans-serif"><a href="https://www.ejprarediseases.org/event/international-summer-school-on-rare-disease-registries-and-fairification-of-data-2/" target="_blank">https://www.ejprarediseases.org/event/international-summer-school-on-rare-disease-registries-and-fairification-of-data-2/</a><br><br></font></div><div>For all kinds of queries, please contact Dr. Claudio Carta at: <a href="mailto:claudio.carta@iss.it" target="_blank">claudio.carta@iss.it</a><br></div><div><span style="white-space:pre-wrap;color:rgb(0,0,0);font-family:arial,sans-serif"><br></span></div><div><span style="white-space:pre-wrap;color:rgb(0,0,0);font-family:arial,sans-serif"><br></span></div><div><span style="white-space:pre-wrap;color:rgb(0,0,0);font-family:arial,sans-serif">Kind regards,</span><br></div><div><div><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><font color="#000000" face="arial, sans-serif"><span style="white-space:pre-wrap">Loredana Le Pera (ELIXIR-IT Deputy Training Coordinator, ISS, Italy)</span></font></p></div><p class="MsoNormal" style="margin:0cm 0cm 0.0001pt"><font face="arial, sans-serif"><span style="color:black;background-image:initial;background-position:initial;background-size:initial;background-repeat:initial;background-origin:initial;background-clip:initial">on behalf of the ELIXIR-IT Training Team</span><span lang="EN-US" style="color:black;background-image:initial;background-position:initial;background-size:initial;background-repeat:initial;background-origin:initial;background-clip:initial">.</span></font></p><div><font face="arial, sans-serif"><br></font></div><div><p dir="ltr" style="line-height:1.38;margin-top:0pt;margin-bottom:0pt"><font face="arial, sans-serif"><i>We apologise for cross-posting. </i><i><span style="background-color:transparent">Please, email us back with the word REMOVE as the subject line, if you don&#39;t want to receive </span>messages from ELIXIR-IT Training anymore.</i></font></p></div></div></div></div></div></div></div></div></div><div><br></div><span class="gmail_signature_prefix">-- </span><br><div dir="ltr" class="gmail_signature" data-smartmail="gmail_signature"><div dir="ltr"><b>ELIXIR-IIB Training </b><div><a href="https://elixir-iib-training.github.io/website/" target="_blank">https://elixir-iib-training.github.io/website/</a><br></div><div><br></div><div><img width="96" height="72" src="https://ci3.googleusercontent.com/mail-sig/AIorK4w5ncNZBTMSbpTrPUvjjRQcMsjTpYIdbTMx7hQBgBGA9hp3vhhs_Nc4ilxpH2OZwAgtV6kNnicRYxwWP45Md0Ayc9o7kk-67lS5sE09kw"><br></div></div></div></div>